Proprioception is how your body knows where it is in space. You don’t have to look at your feet when you walk. They know where they are and what they are doing without input from your eyes. My autonomic neuropathy causes impaired proprioception, and this leads to imbalance, and sometimes…falls.
Other people with disease under the dysautonomia umbrella fall because they faint. This is ultimately a good thing. It’s a way for the brain to be sure it gets the necessary blood supply. When I had my tilt table test, my blood pressure was dangerously low, but I never fainted.
This is not a good thing.
While I don’t like the idea of my head meeting concrete, I love the idea of a blood supply to my brain. I have to listen extra hard to my body because wearing a blood pressure monitor 24/7 is not an option, but I need to know when I should get low and flat.
I have to share that the Irish Dysautonomia Awareness mascot is the Fainting Goat. Hilarious! (They have a store if you want to support them and wear a fainting goat.)
Another thing that I forget is that I can't do flips or spins or other things that used to bring my ten-year-old-masquerading-as-an-adult-self joy. I did this in the pool to learn my lesson - because I like to do things the hard way. Luckily, my husband was there and pulled my dumb ass out of the water.
I had to give up heels, too. And rollercoasters. Neither of which I was using much, anyway, so it's cool.
Physical therapy has been a big benefit to my balance problems. I did exercises to help me turn my head while walking without stumbling or becoming nauseated. As part of this therapy, I watched eye-brain training videos (optokinetic stimulation) on youtube.com.
If you have a chronic illness that involves balance issues, I highly recommend PT.
Do you have any funny looking back at it, but it hurt at the time stories?