Monday, April 25, 2016


Many people that I know online with chronic illness suffer from loneliness. We have lost friends, we are misunderstood, and our bodies often don't allow the normal ease of socialization.

I read this passage by Annie Dillard in The Pilgrim of Tinker Creek this week, and it struck me as a lovely expression of how we are all similar in our body's failures and faults. It is a beautiful paragraph showing while we may be lonely, we are not alone.

"I am a frayed and nibbled survivor in a fallen world, and I am getting along. I am aging and eaten and have done my share of eating too. I am not washed and beautiful, in control of a shining world in which everything fits, but instead am wandering awed about on a splintered wreck I've come to care for, whose gnawed trees breathe a delicate air, whose bloodied and scarred creatures are my dearest companions, and whose beauty beats and shines not in its imperfections, but overwhelmingly in spite of them, under the wind-rent clouds, upstream and down."

1 comment:

  1. Nothing has pissed me off more than "friends" who have backed away and given some pathetic excuse. We have had people pull some "Secret" vision board bullshit, as if dysautonomia is going to screw up their chi. Others just drift away, but still expect you to be just as attentive to their needs. Yet, we have support. You are not alone and we have love and compassion.


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