There’s a fine line between encouraging lifestyle changes and implying we aren’t trying hard enough to get better.
Some things people suggest aren’t even safe or possible because of the nature of the disease.
While meditation, yoga, foot soaks, essential oils, and whatever might seem like a great thing to suggest to someone with a chronic illness, it belittles our experience.
We probably prefer that you simply listen with empathy instead of trying to fix it.
Chances are good that we’ve either a)already tried it or b)it would make us worse. Explaining any of that makes us feel ungrateful and like we haven't been heard.
Just because we're not willing (or able) to drop hundreds of dollars on the latest health fad doesn’t mean that we don’t want to be cured.
Many people in my online support groups get angry and frustrated with friends or family who make these casual and earnest suggestions.
I prefer to think that the person saying those things has my best interests in mind.
I prefer to think that they are trying to help, but in a lazy way.
I prefer to think that they truly believe that what they are saying is well-intended. They just don’t realize that we aren’t idiots, and we live on the same planet - so yes, we’ve heard of it.
Not to mention, we have an entire health care team trying to make us better.
While I appreciate that you are trying to help, often the best help is to listen and acknowledge my experience and emotions.